Voin_Sveta / shutterstock.com
Paul Adam, MSW, has long been passionate about research, but it was attending ACR/ARHP meetings that solidified his decision to pursue it in his social work career.
“I would get Arthritis Care & Research every month and look for articles pertaining to what I did, and go to the [ACR/ARHP] Annual Meeting and see a person presenting their journal article or see them on a committee,” he says. Getting to know them and realizing they were down to Earth helped alleviate the intimidation Mr. Adam first felt when wading into the research realm and convinced him that he, too, was cut out for research.
He has now worked at the Centre for three decades.
Mr. Adam
joined ARHP (now known as the Association of Rheumatology Professionals [ARP]) in 1990, upon attending the Annual Meeting with a group of other rheumatology professionals. “The meeting happened to be in Seattle that year, so we took a bus down,” he says. “I was so impressed with the quality of the education provided—the range of speakers—[that] I was hooked after that first meeting.”
The first half of Mr. Adam’s career was dedicated to counseling. He focused on helping people navigate the health and social challenges—such as depression, job security, financial concerns and housing—that can accompany a rheumatic disease diagnosis.
“Arthritis can have a big impact on a family, too,” says Mr. Adam. “That’s another area where counseling can help, and I enjoyed seeing someone coping better after they were finished working with us.”
Tools for Patients
The second half of his career has been committed to more administrative work, but in particular, helping create useful tools for rheumatology patients and the rheumatologists who treat them.
“As a social worker, I found that it took people two to three years to really get a handle on interpreting their symptoms and then knowing what to do about them,” Mr. Adam says. “I wondered if there was a way to make that easier and shorten that learning curve.”
He worked with a team of researchers to create a computer-based tool to measure rheumatoid arthritis disease activity and deliver individualized recommendations to patients. The tool also assesses clinical depression and provides recommendations for online resources to help people manage it.
“We are looking at how online tools can empower patients to better manage their disease,” Mr. Adam explains.
The tool, which was tested in a six-month trial, proved helpful for long-time patients, too, he says, because it generates reports they can bring to their providers. The research team has received grants to refine the tool based on participant feedback and to create an app, which is still being evaluated.
“Some patients have said they have a hard time remembering how long symptoms like pain lasted, because maybe one-and-a-half months ago they were feeling bad but now they’re feeling good and they want to forget,” he says. The tool “graphs what’s happening and gets rheumatologists the information they need to consider whether changes are required in their medical management.”
