Advocate for Prompt Vasculitis Diagnosis & Treatment

If possible, Dr. Kermani says referring patients to an academic center with expertise in the care of vasculitis can allow patients access to opportunities to participate in research or new therapies. She notes you don’t have to be at an academic center to educate colleagues and other health professionals or to learn. She says, “An open dialogue and discussion with other members of the patient care team is an enriching experience and broadens our perspective.”

4. Stay Current with Treatment Options
For any rheumatic disease, including vasculitis, keeping up with the latest clinical trials research can help in tailoring the appropriate treatment plan for the patient, Dr. Kermani shares. Although good clinical trial data exist for some forms of vasculitis, such as anti-neutrophil cytoplasmic antibody (ANCA)-associated vasculitis, further research is needed for many.

“Our efforts can [affect] patient lives in a profound way,” Dr. Kermani stresses. “Recognizing our limitations and reaching out to colleagues when we are facing challenges to discuss things is also a very important way we advocate for our patients.”

Carina Stanton is a freelance science journalist in Denver.

Reference

1. The American College of Rheumatology. Diseases & conditions: Vasculitis. 2017.