Many rheumatologists interviewed here like to reinforce to their patients that the Internet is no substitute for a physician’s guidance. “For my patients who use the Internet, I emphasize that they be cautious in interpreting things they read and to never act upon anything without discussing it first with their physician,” adds Dr. Langford.
Jennifer Decker Arevalo is a medical journalist based in San Diego.
Are Your Education Materials Patient Friendly?
Physicians usually review patient education materials – be they print or Web site – to ensure that they are evidence based, unbiased, and written by experts in the field. “At the ACR, content experts in conjunction with a medical writer compose the patient fact sheets,” says Dr. Lohr. “The ACR’s Patient Education Task Force’s role is to provide an unbiased, second layer of review to check that the information being distributed is factual.”
However, there is more to patient education than having your facts straight. Because the average American reads at the 8th grade reading level, patient education materials should be written in plain language. “This means writing in ways that people can understand,” says Helen Osborne, MEd, OTR/L, author of Health Literacy from A to Z: Practical Ways to Communicate Your Health Message. Plain language includes:
- Organizing messages from the reader’s point of view;
- Using common one- or two-syllable words (sometimes called “living-room” language);
- Defining complicated, yet necessary, medical words clearly and simply;
- Having just one concept in a sentence; and
- Writing in a friendly, respectful tone.
One method to test the readability level of a piece is to administer the Simple Measure of Gobbledygook (SMOG) factor, which looks at the number of three or more syllable words in a text sample and calculates the years of education a reader would need in order to understand the text. (A SMOG calculator is available online at http://webpages.charter.net/ghal/SMOG.html.)
In healthcare today, patients and their families are asked to assume a lot of responsibility for their treatment and care. In order to do so responsibly, they must first learn what to do.
Pictures Worth A Thousand Words
“Just as important as words are the graphics and layout,” says Osborne. “Simple graphics and good layout help make messages easier to understand. For instance, simple line drawings such as pictographs can show, not just tell, ideas and actions that readers must know and do. Good layout, including proper font size and style, contrast, and adequate white space, help make documents look more appealing and inviting to read.” Serif fonts, such as Times New Roman, are easier for people to read.