Another study, “ANCA-Associated Vasculitis Management in the United States: Data from the RISE Registry,” will be presented by Zachary Wallace, MD, MSc, a rheumatologist at Massachusetts General Hospital in Boston. His project focused on evaluating treatment patterns for ANCA-associated vasculitis. Dr. Wallace notes the advantages of being able to use such a unique data set: “We’ve seen that RISE can be used to study the variety of ways patients with rheumatoid arthritis are actually being treated,” he says. “Now we’re seeing that it also provides an incredible opportunity to study less common rheumatic diseases, like vasculitis, where sample sizes from other data sets would be too small.”
Dr. Wallace explains that his work with the RISE data analytic center at the University of Alabama, Birmingham, was collaborative and focused on fulfilling his research goals.
Ms. Izadi worked with the RISE DAC at UCSF on her project and says the analytics team demonstrated expertise and was “prompt and very thorough in running the queries for me.”
RISE at the Annual Meeting
Abstracts using data from RISE that will be presented at the 2019 ACR/ARP Annual Meeting include:
- Identifying Comorbidities and Seropositivity in Rheumatoid Arthritis Patients Using Single-specialty Electronic Health Record Data (poster, Nov. 10, 9–11 a.m.)
- Characteristics of Patients with Systemic Sclerosis in the Rheumatology Informatics System for Effectiveness (RISE) Registry (poster, Nov. 10, 9–11 a.m.)
- Pre-treatment Screening for Hepatitis B and C Among Users of Biologics or New Synthetic Disease Modifying Drugs: An Analysis Using RISE Data (poster, Nov. 10, 9–11 a.m.)
- The ACR’s Rheumatology Informatics System for Effectiveness (RISE) Demonstrates Improvements in Many Measures of Quality of Care between 2015 and 2017 (poster, Nov. 10, 9–11 a.m.)
- Patterns of Newer Gout Medication Use in a U.S. Electronic Health Record-Based Registry (poster, Nov. 10, 9–11 a.m.)
- ANCA-Associated Vasculitis Management in the United States: Data from the RISE Registry (oral presentation, Nov. 10, 2:30–4 p.m.)
- Patterns of Medication Use for Patients with Sarcoidosis: Data from the ACR’s RISE Registry (poster, Nov. 11, 9–11 a.m.)
- Treatment Response to Biologic DMARDs in Patients with RA: A Retrospective Analysis of the RISE Registry (poster, Nov. 11, 9–11 a.m.)
- Gaps in Care for Patients with SLE: Data from the ACR’s RISE Registry (oral presentation, Nov. 10, 4:30–6 p.m.)
Sessions featuring information on RISE data for research purposes at the 2019 ACR/ARP Annual Meeting include:
- Premeeting Clinical Research Conference: Big Data: Analytics, EMR, Registries and Beyond (paid session, Nov. 9, 7 a.m.–4:15 p.m.)
- Using the RISE Registry to Improve Practice & Research (session, Nov. 13, 9–10 a.m.)
