For the past 16 years, the website, creakyjoints.org, founded by arthritis patient Seth Ginsberg and social entrepreneur Louis Tharp, has offered arthritis patients and their families a safe online community where they can receive meaningful support and education. In March, the online portal added a new initiative—Arthritis Power, the first-ever patient-led, patient-generated, app-based research registry…
Physician burnout is high and climbing. A 2015 report published by Medscape showed that nearly half (46%) of physicians surveyed responded that they were experiencing burnout; that number is up from 39.8% reported in a similar survey in 2013.1 These physicians experience the tell-tale signs of burnout: loss of enthusiasm for work (or emotional exhaustion),…
Awards, appointments and announcements in the world of rheumatology
Health information technology may distract physicians during exam room visits with patients
A rheumatologist voices skepticism that physicians, patients can arrive at mutually shared healthcare decisions
Patient survey questionnaires, metrics to gauge physician performance may not be trustworthy indicators of quality of patient care
The system synthesizes information from several sources that are usually scattered, and presents physicians with an easy-to-access guide to a patient with up-to-the-minute information.
Why I sometimes read poetry instead of medicine—and why you should, too
Patient empowerment and education are important parts of rheumatology care.
Systemic sclerosis (SSc; scleroderma) is a disease in which inflammatory and fibrotic changes result in overproduction and accumulation of collagen and other extracellular matrix proteins, resulting in intimal vascular damage, fibrosis, and occasionally organ dysfunction affecting the gastrointestinal, lung, heart, and renal systems. There are two classifications of SSc—limited cutaneous or CREST (calcinosis, Raynaud’s, esophageal dysmotility, sclerodactyly, and telangectasias) syndrome, where skin thickening occurs mainly in the distal extremities and facial/neck areas and internal organ involvement, if present, occurs later in the disease process; and diffuse cutaneous disease where there is a more rapid progression of skin thickening from distal to proximal and organ involvement can be severe and occur early in the disease. As noted by various authors, there is no “crystal ball” into which one can look to see the outcome of the disease, and involvement varies significantly from one person to the next.